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The 1st step for Warrior Caregivers...

Posted May 21, 2010 07:21 AM
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We need to start by acknowledging what hurts.

As victim caregivers, we try to be strong all the time for the ones
that we are giving care to. We do not want the ones receiving care
to know that we are feeling hurt and unappreciated. We also do not
want any health care professionals to know that we are having these
hurtful and angry feelings while we are being the responsible caregiver.

We tend to ignore or stifle our own feelings as we are so busy caring
for others and feel that it is not right for us to have these hurtful
feelings. We feel sorry for ourselves but we do not want to acknowledge
what really hurts.

Let's begin the process of moving from Victim caregiver to WARRIOR CAREGIVER:
* Write down a complete list of what hurts
* Read the list aloud to yourself and to your support group
* Acknowledge your feelings
* Accept and manage your feelings
* Acknowledge yourself and gain strength
* Move forward and find laughter

You need to start by writing down all the things that hurt your feelings.
This may be as simple as not receiving a thank you for something special
that you have done to a complex hurt that is both verbal and mental abuse
from the one you are caring for. When you write down all these hurts it
begins the acknowledgement process in your own mind.

You need to make sure that the list is complete. You can not leave out
anything that makes you feel hurt. You might think that it is a small and
insignificant hurt so you can ignore it. However, this is not true. All
hurts big and small must be on the list.

You need to read the list out loud to yourself and to those close to you.
This is important as it makes you acknowledge the hurt and at the same
time you share that hurt with your support group. This gives your support
group the opportunity to get to know why you react the way you do and
therefore helps them understand you better.

You need to accept that all feelings are acceptable once you have
acknowledged them. It is normal for caregivers to feel anger. This anger
may be focused at the one that you are caring for and then it may shift to
you being angry at yourself for having these feelings. You may even direct
your anger towards your own support group. Acknowledging the anger and
learning to manage the anger are part of the first step.

You need to acknowledge yourself. You need to accept that you may not
receive the appreciation from those you are providing care to. You do not
want to become the forgotten caregiver. You feel that you are giving up
your life for the sake of all those you are providing care to.

By acknowledging yourself you gain strength to move forward to do more.
You need to accept that as a caregiver, you will have these feelings. You
know that you love the one that you are giving care to and that there will
be times that you will feel anger towards them. Once you acknowledge this,
then you will be able to control this anger. You need to accept that the
one you are giving care to may not be able to show their appreciation of
what you do for them.

You need to know that feelings of resentment for all the time required for
care giving is appreciated even if not acknowledged. You need to be able
to acknowledge the hurt and move forward. You need to be able to write
it down and laugh at it later.

This is the first step in the process of becoming a Warrior Caregiver.
Good for you for acknowledging what hurts!!

Janie Pighin

I invite you to come join us in the Warrior Caregiver Community where
we provide a safe platform for support & collaboration. Click Here


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7 Comments
Thank you for giving a place to care for the care givers... because what we give, we need to learn we need for ourselves. And that can be the greatest challenge and the hardest thing to ask for!
Thanks
Michelle
Having been a caregiver for a bi-polar person, I understand the need for patience and loving understanding. To be able to continue giving
enthusiasm and joy for the most simple gifts we have been given by our Creator

In gratitude
Lena Mae
I totally agree with the posting on how difficult it can be , the difficult relationship dynaming, the Victim Caregiver Feelings and the difficult path so many of us walk daily - However after listing our hurts - I would offer a next step.
Find a way and a place that can reframe our experience as caregivers -
It is in that context I share an article I wrote about my experience with my mom who is now 101 with Alzheimers Disease..rather than stay focused on what is missing - look at what is still a gift. . hopefully it will be helpful to someone who is feeling the heaviness of their burden as caregiver - Often times in surviving our challenges - It is our perspective that get us through. Article Below: .



Who Are YOU? (A Special Journey into Alzheimer’s)

By: Mary Muir, M.Ed.

For the first time in my life, mother does not know me.
For the past five years, mom has had Alzheimer’s. Every day my husband Roger and I have taken her for rides or out for tea.. This special ritual helped sustain her quality of life despite her having to leave her home to live in a Rest Home. She loved our time together and always greeted us with a ready smile and: “I am so glad you’re here. - Let’s go do something.”

Last December, Mom turned 100, but she walked unaided. She chatted about the simple joys of nature, trees, sunshine, clouds and changing weather. I call her my “Mindfulness Guru”. Despite Alzheimer’s, she has continued to teach me, always noticing the size and shades of the green trees and the blue sky.

I continually remember hearing her share a favorite quote of hers : “Focus on the Now Point of Time.”

In July 2009, after returning from short vacation, We were shocked. Mom had “lost” all memory of us. Heads spinning... we too felt "lost". My husband Roger and I were erased in the plaque and tangles of Alzheimer’s.
It’s heart wrenching to hear her ask me who I am; if I know where her daughter is and why her daughter isn’t here.
.
This is a new place in her journey and a change in my role as her only child
--There’s a major shift in our relationship.
Although I knew this could happen, I was not fully prepared for the emotional impact of becoming a total stranger to my own mother.

It is difficult to imagine the heartbreak and emotional readjustment it demands.
The best way now is to avoid making any reference to being her daughter. I believe it’s important to confront reality and not walk away. It’s hard to accept, but the biggest life lessons come from life’s difficult challenges.
Now I focus on the calmness and comfort I can bring. I cherish the momentary glimpses of the loving woman I have known all my life.
She still notices the beauty of the sky and trees. Her gift is still a reminder to be fully present to the simple blessings.
We have let go of the need for roles and titles. We are now just two pilgrims on this journey. Our focus is to relate at the heart level.


As tribute to my mom and legacy to all daughters, I offer this simple prayer –
May you go on life’s journey with open mind, heart and spirit.
May you find the blessings of the “Now Point of Time”.
May you make time to “Be” with those you love and
May you always honor and cherish one another–
---While you can.
(c) All rights reserved. Author; Mary Muir, M.Ed. Mind Body Therapist, Speaker and Expressive Arts Educator and Facilitator and Reiki Practitioner and Loving Daughter. – you can reach her at mmuirwellness@gmail.com
Hi Janie,

Thank you for the invitation to join your community.

Ever so true about all that you shared.

I am not a care giver at the moment and do miss it, more of a prayer warrior.

Just wanted to welcome you and to say you will find a lot of care givers here.

Take care Dear one we need you.

Grateful,

Georgiegal
Hello Janie :-D

What a wonderful post - and I can so relate. Being a teacher, a parent and child caregiver for decades, frequently left me feeling unappreciated, exhausted and discouraged.

Over the last several years I have come to identify that group of feelings as my TPC button - teacher, parent caregiver button.

Having done the internal work, and dealing with many emotions, now when the volume on my TPC button is raised... I can observe what is rising and deal with it.

I appreciate the way you were able to explain the necessity of acknowledging our feelings and accepting our selves through it all.All so true!

Beautifully done...
:)

I look forward to reading your future posts!

Cheers to manifesting more Joy, Internal Success, and Abundance!

Lynette
Ritual Divas Community
Thank you for the advice I will certainly put it to use. Sometimes I feel as if the world is on my shoulders,worrying about the needs of others and let myself go until I am exhausted and depressed. i have so many things that make me feel bad some I am responsible for and others that I created by letting them happen to me . My problem is I hate saying No even when I know I should. I am so Thankful I found this web-site. I have committed myself to planting a seed of wisdom and change and i now want to watch it grow. I don't have support group so to speak but I hope by being on this web-site I will get the support from those who may feel what I feel. Thanks again..
Hello Janie,

Being a caregiver on any level takes great patience and strength...and our unconditional love is so important in the process.

Thank you for encouraging and inspiring all those who are caregivers to be "Warrior Caregivers".

In Gratitude....:-x
Linda Kay Holden
New Beginnings Community
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