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The Remembered Caregiver

Posted Oct 29, 2010 08:00 PM
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When we are giving care to others, it is easy to fall victim to becoming a forgotten caregiver. What happens is that everyone takes for granted that we will make sure that all the care giving duties are completed. They no longer worry about helping out. No one even acknowledges any of the care giving work that we have juggled into our lives. They are all "too busy" to make sure that we have time for ourselves and for our other family members.

I remember how easily I became a forgotten caregiver. When my cerebral palsy daughter was a baby and a toddler,she was prone to seizures. No one wanted to look after her as they did not want to take on the additional responsibility of caring for her. Even getting a babysitter for an evening out was a challenge. Her father would also not look after her by himself as he too was intimidated by her condition. As a result, I was the one and only caregiver to my daughter for the first few years of her life. My daughter was in physiotherapy classes at the Children's Hospital which was about an hours drive from where I lived. I had to drive her to these classes three days a week and juggle my other two children between grandparents and other relatives. I had become a forgotten caregiver.

Warrior Caregivers make sure that they always remain remembered caregivers and do not become forgotten caregivers.

Warrior Caregivers are remembered by:
Ensuring that all those able to help with the care giving are included in the schedule
Keeping control while still delegating out care giving duties
Making time for themselves and other family members
Making sure that all others involved are part of the decisions
Accepting help and acknowledgment for all the work
Warrior Caregivers ensure that all those that can help with some of the care giving are worked into the schedule. They do not accept that these people always appear to be too busy. They make sure that the duties are shared between all involved.

Warrior Caregivers keep control by making sure that care giving that cannot be completed by them is delegated out to those available to help. They also ensure that care giving is completed by others in a positive and timely manner.

Warrior Caregivers never lose sight of themselves because they make time for themselves. They also make sure that other family members are not forgotten due to care giving duties. They make sure that they work in time for all so that no one feels left out.

Warrior Caregivers make sure that others involved in the care giving duties are also a part of the decisions. This makes everyone feel important and also keeps them involved. This way, no one becomes forgotten.

Warrior Caregivers readily accept help with the care giving duties. They also accept acknowledgment from others for the work that they do. They are not too proud to accept either of these.

I had to educate others on how to care for my daughter. I had to learn how to delegate to others so that I had time for myself. I had to include others in the decision making process and I had to accept that I could not do it all. I had to accept help and I had to accept acknowledgment from others. I did this and became a remembered caregiver.

I invite you to come join us in the Warrior Caregiver Community where we provide a safe platform for support & collaboration.

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3 Comments
Janie the work you are doing to empower caregivers is so important, and it was such a pleasure to meet you at RISE.

It would be so wonderful if your message was one of the first things that mothers and caregivers heard after they were faced with a diagnosis. In fact you should offer "care giving training" which should be incorporated with children s therapy... it is such a critical part of the process, and it is completely overlooked!

It can be such a lonely road, and for those of us who just do what we do, it seems to confuse others into thinking that we do not need any help.

My family members still treat me as if I'm raising a typical family. Not only do I have 3 boys all under 6, my oldest too has Cerebral Palsy. His care requires things of me which most regular parents can not imagine. I refuse to complain, because I see the true blessing he is in our family. But on an emotional, physical and mental level a LOT is going on with caregivers at any given moment, even when they SMILE through it all.

In my experience, people just treat our family as typical, and even offer us lots of judgment and critique from their comfy arm chairs.

As a caregiver, you have to TAKE time for yourself knowing and trusting that it is the best thing you can do to continue to provide OPTIMAL care.

This for me means, following my dreams and passions and having to overcome criticism for doing so.

At RISE I remembered that what other people think is not my business!

Keep doing to great work that you are doing, it is so necessary, your message needs to be heard in a BIG way, you need to be on TV and get in to peoples homes!

Lots of loving support, light, and blessings!

HarmonyLove
Hi Janie,

Your valuable insights open the eyes and hearts many who are also caregivers....or who have traveled done this path. Thank you....

When I was a caregiver for my mother, it was difficult to learn to 'let go' of the responsibilities of her care. It takes courage and trust to allow others to care for those we love. And as you point out, it is so important to acknowledge the assistance given.

In Gratitude....:-x
Linda Kay Holden
New Beginnings Community
Hi Janie..

So much of what you shared here sure brings back memories with the care of my mother who had Alzheimers! It's easy to fall into the trap of becoming isolated from others when you should be doing just the opposite. There were so many days of thoughts and feelings that were kept inside and not shared with my siblings because I felt that they just "didn't get it"! And what you said about everyone taking you for granted with the caregiving duties, is so true! I knew it then, and I knew it when she was in the sunset of her life..When they "should have" known that over the years, a person does change and will and that suddenly your mom cannot do the things she used to do. If only they understood that we change on a daily basis and before you know it, wham...she can no longer fly across country to visit her son, spend a day at the zoo without needing assistance with incontence issues, have someone help her with her meds and actually know what those meds are! For some it was a very eyeopening awakening with wondering where did mom go, why can't she do this or that, etc. The whole process of aging can sometimes be very sad and yet it doesn't have to be. My take on caregiving is that we should help ALL the baby boomers now, ALL our parents, and ALL those who are sick and/or lonely because they truly really are our brothers and sisters. They need us as much as we need them.
Thanks for sharing your thoughts...:-x
Peggy
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