The Remembered Caregiver
3 Comments
Janie the work you are doing to empower caregivers is so important, and it was such a pleasure to meet you at RISE. It would be so wonderful if your message was one of the first things that mothers and caregivers heard after they were faced with a diagnosis. In fact you should offer "care giving training" which should be incorporated with children s therapy... it is such a critical part of the process, and it is completely overlooked! It can be such a lonely road, and for those of us who just do what we do, it seems to confuse others into thinking that we do not need any help. My family members still treat me as if I'm raising a typical family. Not only do I have 3 boys all under 6, my oldest too has Cerebral Palsy. His care requires things of me which most regular parents can not imagine. I refuse to complain, because I see the true blessing he is in our family. But on an emotional, physical and mental level a LOT is going on with caregivers at any given moment, even when they SMILE through it all. In my experience, people just treat our family as typical, and even offer us lots of judgment and critique from their comfy arm chairs. As a caregiver, you have to TAKE time for yourself knowing and trusting that it is the best thing you can do to continue to provide OPTIMAL care. This for me means, following my dreams and passions and having to overcome criticism for doing so. At RISE I remembered that what other people think is not my business! Keep doing to great work that you are doing, it is so necessary, your message needs to be heard in a BIG way, you need to be on TV and get in to peoples homes! Lots of loving support, light, and blessings! HarmonyLove Hi Janie, Your valuable insights open the eyes and hearts many who are also caregivers....or who have traveled done this path. Thank you.... When I was a caregiver for my mother, it was difficult to learn to 'let go' of the responsibilities of her care. It takes courage and trust to allow others to care for those we love. And as you point out, it is so important to acknowledge the assistance given. In Gratitude.... Linda Kay Holden New Beginnings Community Hi Janie.. So much of what you shared here sure brings back memories with the care of my mother who had Alzheimers! It's easy to fall into the trap of becoming isolated from others when you should be doing just the opposite. There were so many days of thoughts and feelings that were kept inside and not shared with my siblings because I felt that they just "didn't get it"! And what you said about everyone taking you for granted with the caregiving duties, is so true! I knew it then, and I knew it when she was in the sunset of her life..When they "should have" known that over the years, a person does change and will and that suddenly your mom cannot do the things she used to do. If only they understood that we change on a daily basis and before you know it, wham...she can no longer fly across country to visit her son, spend a day at the zoo without needing assistance with incontence issues, have someone help her with her meds and actually know what those meds are! For some it was a very eyeopening awakening with wondering where did mom go, why can't she do this or that, etc. The whole process of aging can sometimes be very sad and yet it doesn't have to be. My take on caregiving is that we should help ALL the baby boomers now, ALL our parents, and ALL those who are sick and/or lonely because they truly really are our brothers and sisters. They need us as much as we need them. Thanks for sharing your thoughts... Peggy
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