What a great topic.. I would love for others to know how many people have chronic pain and what it can do to them. It's physically, emotionally, and financially draining. So many people look at chronic pain as a "all in your head" issue and I am out to change that thinking. I have had Doctors, friends, and family accuse me of "faking" my health. I have had RSD since I was 8, and missed out on a lot of life because of it... Why would I do that? I hope people will do research and think before they speak to others with chronic pain. They need your support, not your assumptions. There are millions that suffer with chronic pain, and many that are feeling they are alone in this fight. One word can turn into a million, and I want others to know you never have to fight alone. http://www.tkorsds.org -- Imagine a day, an hour, or even a minute without pain; that is what we are fighting so hard for.
mamaforeve..
Posts: 1
Registered: Nov 25, 2011
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(27 of 27)
Re: Chronic Pain
Dec 5, 2011 07:19 AM
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I am new to Braveheart. Presently, I am suffering from chronic upper limb pain. The doctor who saw me in July, 2011 just gave me some pain medications and told me to exercise my arms. I do not believe in long term medications, so I only took the meds when the pain was severe. I tried to exercise in the pool only once, but I did not go back for more. The pain has progressed to the point where I can't sleep as long as I used to, and I have developed some weakness. I have requested that I undergo rehabilitation, and I will start my sessions tomorrow. My husband and my sons are alarmed and are trying their best to cope with my pain. I haven't told the rest of the family yet, as we are living abroad at the moment. I will tell my parents about this when we go to our home country for a vacation next year. I am grateful for the posts in this forum, because I know now that I am not alone. Thank you for this opportunity to share my pain with this empowering community. I am humbled by the courage and tenacity of the women who shared their pain and how they coped in this forum. Blessings to everyone!
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ethericalc..
Posts: 60
From:Shelby, North Carolina
Registered: Dec 1, 2010
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(26 of 27)
Re: Chronic Pain
Apr 4, 2011 04:30 PM
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I had not heard the term RSD so I'm grateful to be learning something new today. From what I read online, it appears that internal inflammation could be a factor. You know, if you are under treatments for RSD, you must check with doc before adding anything new to your diet. Having said that, I'd ask your doctor if taking a natural anti-inflammatory like turmeric or mangosteen juice might be helpful. Boswellia is another natural anti-inflammatory you might check into taking. I'm not a fan of prescription drug anti-inflammatory drugs like NSAIDS because of potential impact on organs like the liver and kidneys with longeterm use, along with other unwanted side effects. Natural anti-inflammatory substances work great in my own case. Another factor that may be underlying could be acidic ph. You can buy the little test strips and test your own ph with saliva. If you are acidic, then there are water additives that alkalize water, such as Water Oz, or you can increase intake of alkaline foods like most green veggies while cutting back temporarily on acidic foods like alcoholic beverages, coffee, sodas and most grains. -- Free Online Acting Class http://www.askahealer.com/metaphysical-acting-class.htm Free Healing Journey E-Class: http://www.askahealer.com/free-ebooks.htm
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nancyolson
Posts: 1
From:Minnesota
Registered: Mar 3, 2011
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(25 of 27)
Re: Chronic Pain
Mar 10, 2011 08:04 AM
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I am new to this community but not new to several diagnosis that have pain linked to them. I suffered with pain for 17 years and I can completely put myself in your stories because so many of them is how I had felt. I had been diagnosis with endometeosis, fibromyalgia, RA, thyroid disease, chronic pain, boarderline diabetic, high blood presure, just to name a few and then a break came with Celiac Disease. I was a fighter to get to the bottom of the issue, for me that ment what are these steming from and it was nutrition for me. When I got nutrition my body totally changed. I am happy to say everything I have listed above is now eliminated from my body other than Celiac disease. With my Celiac disease you eat a gluten free lifestyle and it is a change to get use to for some for me I really wasn't eating mush for food as I was always sick. I totaly can understand the wheelchair issue that someone mentioned life was to much to deal with at times and I needed that. But now I am living a normal life. I would never say that someone has Celiac disease but it is something to check into. Since my diagnosis I am the leader of 2 support groups and would say that 90% of the people in my groups had the fibromyalgia diagnosis 1st, but have controled the pain or eliminated the pain with the diet. I would love for you to check out my blog htt://www.thrivingwithceliac.com Nancy~
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Fiona Old
Posts: 46
From:White Rock, BC, CANADA
Registered: Jul 13, 2010
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(24 of 27)
Re: Chronic Pain
Aug 20, 2010 03:35 PM
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A friend who has had breast cancer, liver cancer and been diagnosed with 4th stage bone cancer has got off the morphine she has been taking for the pain. She is going on 20 km bike rides, rowing and walking. She feels that theta meditation was one of the therapies that really helped her. Meantime another friend suffers from severe phantom pain due to her arm being severed in a car accident 2 years ago. I think she's going to try theta meditation but does anyone have anything to report about this therapy and especially what might work for the phantom pain? Fiona info@vancouvershoppingbyappointment.com (there is no gap in "shopping" it is an error on the site that I can't reverse)
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emmasue
Posts: 5
Registered: Jun 3, 2010
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(23 of 27)
Re: Chronic Pain
Aug 9, 2010 09:16 PM
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Hi Debra My name is Sue and I have lived with chronic pain for years, I was Diagnosed with RA in my 3o's. which is Rheumatoid arthritis, and chronic neck pain from a car accident. I was really depressed all the time, as I had so many things that I loved to do, like building gardens and art work, painting decorating, But my pain kept me from a lot of doing this most of the time. I am now clear of all pain and would be willing to share with you. justlikenew2@hotmail.com
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becazsucce..
Posts: 30
Registered: Jun 15, 2010
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(22 of 27)
Re: Chronic Pain
Aug 8, 2010 02:39 PM
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It's Frustrating to suffer with extreme pain. I remember in my 3rd trimester being pregnant with my Twins I suffered extreme migraine headaches for 2 weeks & I couldn't really do anything for them. If you haven't, you really should watch this. http://www.mindmovies.com/mm20videoseries/joevitale-eft.php?16933 Because if there is anything--and I do mean ANYTHING--that hangs on as an unresolved issue, discomfort, emotional or physical pain, or even just anxious feelings about any particular event--this could be the answer you're looking for. For example--when you watch this video, you're going to hear an incredible story about a woman who suffered from back pain for two solid years, with very little relief no matter what she did. Then she tried this for about 40 minutes--and THEN...her back pain went away. The Natural Way To Heal watch this. http://www.mindmovies.com/mm20videoseries/joevitale-eft.php?16933 to your wellness your BraveHeart buddy Becca -- It's Already Created a Million Millionaires! Get Your Free Copy of Think and Grow Rich by Napoleon Hill and Many other Free Books http://www.FreeTGRbook.com/BeccazSuccess
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The..
Posts: 352
From:Southern California
Registered: Jun 16, 2010
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(21 of 27)
Re: Chronic Pain
Jul 11, 2010 01:37 PM
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Hi, caring heart, There are many modalities that can lessen, if not alleviate about 90% of your pain. (Most people carry about 10% of some sort of ache). One is Unwinding. This Somatic/Visceral technique has been proven to bring people out of pain caused by physical trauma, such as an injury, or accident. Because it is cervical, The nerve impulses are impaired. This technique needs a facilitator. The second technique is called "Body Talk." This technique was invented by a doctor. It requires the use of a tapping technique. It can be done by one's self. There is a protocol that must be followed, but it has shown amazing results. I am in the process of adding video of this on my blog. If interested in trying this modality, (I'll have to e-mail the protocols). E-mail me your request, and tell me about the on-set. I have been doing intuitve bodywork for about 15 years now. I healed my own Chronic pain in about 4 months, this includes the migraines I suffered all my life. Yours in Health, Sheila PhD.M.M.T. -- The opposite of creation is pity. And knowing the difference is Soul-Full!
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Lalani
Posts: 27
From:mid USA
Registered: Jun 17, 2010
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(20 of 27)
Re: Chronic Pain
Jun 17, 2010 02:44 PM
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I want you ladies to know...I am new here..and I will be posting FREE videos/text on the topic of chronic pain topics...using actual footage of myself working on others...as well as myself working on MYSELF to show you how you can help yourselves and others with pain that can be debilitating at times...I guarantee I can help many of you with alot of your pain..currently, I am in the process of editing video for my website which you may find thru my profile... ( EarthMamaCreations.com ) ~Over the next few weeks, I will be posting thru this fab site, as well as my site..I know that once the videos are available, that it will become a very popular place to recieve FREE helpful insight that I haven't seen as of yet. I will never ask you for money, as I feel I want to share my knowledge with the World...together, we can help each other get past the physical pain...and get to the Real work at hand! I welcome ANY questions or REQUESTS for a particular pain relief issue that you would like me to get to first! Love♥Laney -- Lalani Sky DeVine
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pamel59
Posts: 8
From:Buhl, ID
Registered: May 29, 2010
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(19 of 27)
Re: Chronic Pain
Jun 15, 2010 02:39 AM
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There is a Fibromyalgia diet - you can google it - however everyone is differant - therefore, it doesn't always work for everyone - it's basically finding what foods affect your fibro. Foods That Increase Pain: Alcohol, Coffee, Chocolate, Citrus Fruits, Corn, Dairy Eggs, Meat, Nuts, Salt, Sugar, Wheat, Tea, Barley Oats & Rye..above are the worst foods you can eat. Foods That Help Relieve Pain: Apples Apricots, Banannas, Beans, Beets, Berries, Broccoli, Cabbage, Cantaloupe, Carrots, Cauliflower, Celery, Chard, Cherries, Cucumber, Currants, Dates, Figs, Garlic, Ginger, Grapes, Kale, Lettuce, Mangoes, Melons, Mushrooms, Olives, Papaya, Parsley, Peaches, Pears, Peppers, Potatoes, Pumpkin, Radish. Raisins, Soybeans, Spinach, Squash, Sweet Potatoes, & Turnips. I try and eat a bannana prior to bedtime. Bannanas not only help relieve pain but also help you sleep better. Since people with Fibro can't reach the deep sleep patterns most people can--we never get a full restful sleep and that's why we are so fatigued feeling even after we awaken in the morning. Since I've begun to eat a bannana at bedtime I've actually went from 3-4 hrs of sleep to 4-6 hrs of sleep-which may not seem like a lot to most people but for me it's a lot-especially since I haven't been getting up during the night either. I hope this helps you some.........I also use Malic Acid with Magnesium and Sublingal Vitamin B12 spray--I would ask your Doctor before taking supplements due to they can react with certain medications--some need to be taken seperately from medications and sometimes so many hours apart - this info you can discuss with your Pharmacist generally. pamel
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caringhear..
Posts: 4
From:Citronelle, Al
Registered: May 26, 2010
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(18 of 27)
Re: Chronic Pain
Jun 13, 2010 12:04 PM
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Good morning. I am glad to see this site about chronic Pain. I do suffer CF, Fibromyalgia, Narcolepsia, RLS. There are days like today that if I sit to long that I barely can get up and walk. I never had Fibro until 2 years ago when I had a neck injury. Then I read that this is caused from injury to the body. Do you know anything about this? What natural thing could help me? I have never been on so much medicine like I am at this point. Does the humidity cause flare ups? I really have bad days when the weather changes. I have to stay away from MSG, ASPARTAME, Gluten, enriched white flour, yeast. Is there a diet for Fibromyalgia? -- Debra Stringer
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celiacmom
Posts: 1
Registered: Jun 11, 2010
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(17 of 27)
Re: Chronic Pain
Jun 11, 2010 10:35 PM
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I am glad to find this topic. My 12-year-old daughter actually has a Chronic pain disorder. Her doctors are still trying to figure out the cause/diagnosis. She began having debilitating pain in January, with no known trigger. She could not sleep, no pain pills helped, she couldn't attend school. Her doctor told me that she was "just depressed". I guess no one told them the difference between depression causing pain and pain causing depression... She decided to try a gluten-free diet because someone we know suggested it. At the six month mark, she still has chronic pain, but not constant pain. Thank God for the difference! We're still waiting on test results and working on a diagnosis.
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JanetD
Posts: 2
From:Whitby, ON Canada
Registered: Jun 9, 2010
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(16 of 27)
Re: Chronic Pain
Jun 11, 2010 10:35 AM
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I suffer from OA, Fibromyagia, Functional Scoliocic, IBS, and not knowing how to spell all my ailments. I have seen so any doctors its not funny. All I get told is your fine you need to exersice and lose weight. It is very frusterateing, depressing, maddening, and overwhelming! I have just changed doctors again and after about 11 years found a doctor that has already helped me more and any of the specialists and doctor have in a month. All I can say is God Bless my doctor and chiropidist!
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pamel59
Posts: 8
From:Buhl, ID
Registered: May 29, 2010
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(15 of 27)
Re: Chronic Pain
Jun 6, 2010 05:39 PM
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I live with Chronic Pain daily with my Fibromyalgia. However, I also have severe Migraines and IBS since I was 25. Both of these conditions cause me much pain on a chronic basis of several times per week. Sometimes the migraines range up to 72 hrs. long. It is so hard to deal with the Fibromyalgia when people look at you and don't believe you are ill since you don't seem to have a problem like need a cane or something visible that can be seen. I believe that's why many ppl can't accept the fact that chronic pain diseases are so debilitating and an actual disease/disability because it is something they can't link w/ something like a walker or wheelchair. Our pain is invisable to them but we FEEL it, and it is very REAL to us.
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welldoc
Posts: 1
From:merritt island, florida
Registered: Mar 23, 2010
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(14 of 27)
Re: Chronic Pain
Mar 26, 2010 02:18 PM
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33 years ago I had chronic pain, chronic fatigue, migraine headaches and I was only 18 years old at the time. Instead of going the medical route I decided to do something totally different...rebellious...extradordinary ...I studied alternative medicine. I went to some of greatest healers and shook hands with them personally, and did everything they told me to do. Then I studied some more... practiced what I learned on my willing family. After 10 years (remember this was before the internet so learning was a whole lot slower!) I beat all my pain using only what I had learned. I went back to school to get 'official' training as a naturopathic physician and began my first clinic in 1995. I was able to help thousands of people get out of pain using simple, cost effective therapies. Now, I'm on a mission to tell women in pain that there are ways to get out of pain they might not be aware of. I don't believe supplements, eating well, and exercise alone can help anymore. I think that as many of you said, emotional and spiritual healing is a very important part as well. But to get relief in order to think through the pain, I recommend oxygen therapies. Many times when I was in pain, I couldn't think straight, only that I wanted out of the pain, and fast! Look up oxygen therapies on the 'net. I found it to be highly effective and it could help many of you. Here to serve you, Judy
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Guest
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(13 of 27)
Re: Chronic Pain
Feb 28, 2010 11:08 AM
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What a great topic because I have suffered from Fibromyalgia for over 15 years now. I have trouble holding jobs and miss a lot of family functions. My family doesn't support me and I think it is because no one has taken the time to learn about this disease or talk to me about it. The only support I get is from my husband, my parents and my in-laws. I just started a blog about this and a local support group for women. Please follow my blog You can comment on anything and everything. Please subscribe to my blog that way you know when I post something. I would love it if you introduced yourself under that section. I also have a twitter account. The hard thing is I have not been on any medicine for over 3 years now because my husband and I are trying to start a family. I am taking supplements, but I have really bad days sometimes. I would love to connect with you, so please feel free to e-mail me at marbore@rochester.rr.com. Thanks and I hope to talk to you all soon.
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DivineLotu..
Posts: 5
From:Tampa, FL
Registered: Feb 20, 2010
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(12 of 27)
Re: Chronic Pain
Feb 21, 2010 11:39 AM
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Hello Tita, My prayers go out to you. I totally can relate to being in constant pain. It does seem as if so many people judge us for the unfortunate pain that we suffer from. My doctor and mother (God knows I love her) tell me to move around more. I also suffer from depression and some days are better than others but, other days are horrible and even the thought of getting out of bed is exhausting and painful. It's like how can you find the strength to get out of bed when you feel bad physically and emotionally? Hang in there Tita and know you are not alone. Take time for yourself and do things you enjoy. Pray to your higher power to relieve your pain and give you the strength to keep going. Brave Heart Women are your sisters and we are here to help in listening and offering you support. You can count on us. Peace be with you. Kesia
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